Thread: SPD, 7months after giving birth :(

Hiya
Im having physio, and taking many tablets for the pain relief. Its not just the SPD anymore, its pain all over my back, neck etc, where the muscle has wasted away.
Has anyone else suffered for this long, or is it only me

Hi, I'm sorry to hear your still suffering. I developed it at 17 weeks with my last, by 22 weeks I was in a wheelchair and I didn't walk again until Anastacia was 6 weeks and then I was on crutches until she was 5 months old. She's 2.5 years old for it and I'm still on painkillers, and until Xmas was getting physio/osteopathy on the NHS every week. I pushed my GP to refer me to an Orthopedic specialist a year after Ana was born and they ran some scans. The MRI showed that I had developed Ostelitis Pubis, which is an inflammation of the actual pelvic bone. It's not very common and they think it was the 2 years of SPD that did it. They said the treatment for OP was surgery but that would permanently weaken my pelvis and given my age that wasn't a good idea as I've got a lot of years with my pelvis. He said 4 years and I would get back to normal.

TBH though I've got used to the pain, it's always there and I fit my life around it.

As I said I'm still on prescription painkillers, and just take one day at time. I rest the day before I know I have something to do, I take painkillers the morning I have something to do and I ask for help for the heavy type stuff. I haven't been grocery shopping by myself for over 3 years now as pushing the trolley more then 2 hours leaves me laid up, but DH goes and pushes the trolley and I just put the stuff in! BUT I'm so much better then say a year ago, it's getting better just VERY VERY slowly. It gets bad around my period and ovulation and I have to know my limits.

Just wanted to tell you that you aren't alone BUT there is hope as it rarely stays that bad for life, just recovery is sadly slow.

Is there nothing homeopathic you can take for it Pie? I know Ruta Grav is good for inflammation. Have you been to see a homeopath?
Sorry to crash the thread.....'twas just a thought...
Love
Sarah xXx

Big hugs to you both. I developed SPD late on in my pregnancy with Moo and although it was agony at the time thankfully it cleared up quickly post birth.
I've got again this time since 14 weeks and have to see an osteopath weekly. I have SPD and an inflammed sacro illiac joint this time and it is sooo painful most of the time, I am really struggling at work but only have 3 weeks left thankgoodness. I am really hoping it will clear as quickly as last time as i can't bear the thought of this long term. I can't imagine how you have both coped with it for so long .

Hiya
Thanks for all that.
It sometimes feels like its never going to go away. I still wear the belt, trying not to use my crutches anymore, as the physio said that wont really help the muscle tone.
Pie, can I ask what painkillers you use?
Thanks
Jo

Maybe try reflexology. It may not necessarily cure the problem but it can ease the symptoms considerably. I even found that it helped with cfs (not in me, someone I was practising on.) and parkinsons. I too am still suffering with pain 6 months after giving birth and having spd, but nowhere near as bad as yours sounds and I think mine has more to do with the fact that they had to try eight times to site the epidural and then in order to get stuck lijey out they had to wrap my legs round my neck. ouch, no wonder I could hardly walk by the time they had finished. Would soaking in a hot bath with a couple of drops of lavender oil help? If you do go the reflexology route you need to have a complete course of six or eight or so visits (maybe more, you rarely feel major improvement after just one session, some people do though). Hope you feel bit better soon Reflexology would also relax you hugely.

Originally Posted by RiMMeR

Is there nothing homeopathic you can take for it Pie? I know Ruta Grav is good for inflammation. Have you been to see a homeopath?
Sorry to crash the thread.....'twas just a thought...
Love
Sarah xXx

I've actually been treated at the London Homeopathic Hospital for 2 years now, for this amongst other things. DH thinks I'm beyond help.

Originally Posted by jofeb04

Hiya
Thanks for all that.
It sometimes feels like its never going to go away. I still wear the belt, trying not to use my crutches anymore, as the physio said that wont really help the muscle tone.
Pie, can I ask what painkillers you use?
Thanks
Jo

I have tried Anti-inflamatories life Diclofenac, but they made me too drowsy. So I'm on a combination of pure codiene (between 30mcg and 120mcg - depends on the pain) and naproxen 1000mg.

Pie, I had no idea you still suffered with this after sooooo long, I remember discussing you going to the zoo with a wheelchair years ago.

Although I didn't have SPD I have had long-term mobility problems since birth, culminating in a hip replacement that went seriously wrong 3 years ago, so I hope I can sympathise with the practical difficulties you have with this. As you have long-term mobility difficulties and pain, then have you applied for Disabled Living Allowance? If successful you can get payments to help with getting around (to help pay for taxi's or to run a car), and possibly for care (to help pay someone to help you around the house). I get these, plus some financial help from the local authority. Whilst this doesn't help the symptoms, it means I can pay someone to do a lot of the housework, so I don't get worn out doing that. Hence I can spend more of my energy and less painful time with ds, and that improves our quality of life a great deal.

You may be eligible for these although your condition will improve, you just need to accept that you will be asked for checkups each year or so.

Also if you don't get any domestic help, then don't be afraid to let your standards drop a bit. I don't Iron anything now that isn't absolutely necesary, and occasionally giving ds his meal from tinned stuff won't kill him (I have resorted to fish and chips on a bad day).

Sorry I can't offer any more advice, but hope this helps a bit.

It will be 1 year on the 26th May since my Son was born. I started with SPD when I was just 14 weeks pregnant and its just got worse from then on. I was on crutches by 20 weeks and was supposed to be on perminate bed rest from 28 weeks but due to a large young family (3 otherchildren under 5) I wasnt able to fully bed rest.

After the birth I got round to seeing a Chiropractor and he got me walking again with out crutches but im still in pain. Due to the way my pelvis the right side of my neck is now effected which causes constant pain across my shoulder and down my right arm. Im at the stage of wishing i only had the pain in my pelvis, as although that wasnt good it was easier then now.

I see a physio and im booked for a check to see that my pelvic floor is working right (as far as im aware it is as i have no leaks) but im prepared to check anything just to get sorted.

To see me most people wouldnt realise the horrendous pain im in (well unless its a shocking day and i carnt walk) due to the amount of pain killers I take and my shear determination to keep going (which i have to due to the children).

I can never decide if im doing right by forcing myself to keep going or whether i need to stop and take time off. But how do you take time off with 4 children under 6??

I would be greatful for any tips, one of the best things i bought was an old persons grapper thing to help stop me bending. I also live in a support belt which helps.
From Samantha Pickering