Thread: $%&|*@~*&%^ ECZEMA

Sorry for the expletive. Am so upset tonight- for 2 reasons.

Firstly E is on a bad spell- bath was torture for both of us. Creams had us both crying. E in pain and then me cos I feel like shit for putting it on her ((I know it's for her benefit) and then poor E was saying sorry constantly, begging me to stop. Bandages were equally crap and then the jimjams- she hates them and wants Dora ones.

Secondly- in the exchange this month (eczema soc mag) there was an oldish lady telling her story- how when she was a kid she had splints to stop her scratching- then discussing the development of creams etc and how things have changed over the years. it really depresses me to think that E may have this horrible condition all of her life (I know that there's a chance she may grow out of it but there IS actually a chance that she never will grow out of it)

I don't really want remedies- we're back to the hospital tomorrow for our three monthly visit adn I'm going to ask about wet wrapping her. I just wanted a whinge. Ta for listening xx

Sounds awful for both of you! I'll remember not to whinge next time ds gets a minute amount behind his ear!

Sorry if I am being ignorant as i don't know all the details of dd's condition and consultants etc she mas seen, but have you been to the Dr in London whom I have heard amazing things about? I know someone whose ds suffered terribly and they went private and paid £200 for a consultation and she said it was the best money she has ever spent.

I know you said you didn't want remedies, so sorry for mentioning it if you have been down that route

sorry starry- did i sound abrupt? Didn't mean to.

Erin has had very bad eczema from birth. We normally have it under control although she still has really bad nights and we end up not sleeping for large chunks of the night and then we'll have a good night one in every three.

We see a hospital consultant in our local hospital and we see the eczema nurse regularly. I'm a member of the eczema society. We've tried most creams and emollients. We cut out dairy, rehomed the dog, got rid of the carpets,I clean the hosue from top to bottom every day to stop dust and I change the bed every 3 days to prevent bed bugs. I've tried a few alternative therapies and they made things worse so I'm not interested in that if it replaces traditional medicine but would comsider complimentary therapy. I contacted a homeopath who put me off straight away by going on about immunisations. I don't really want to give her anything to drink/eat unless its been tested.

I feel that i've tried laods of things and am exhausted with it all- tonight was just the straw that broke me lol

do you know what thius doctor is? I'll ask at the hospital tomorrow

I shall try and get his name. ANd no you didnt sound abrupt

I understand its very, very hard for you both. Ds1 had bad eczema from 8 weeks and i found it hellish. The constant applying of creams etc and seeing his sore skin broke my heart. I felt i could never leave him with anyone else (Even DP) as i felt only I was consistant enough with the creams and keeping him copmfortable etc that whenever i went away for a night or 2, i returned to a sore baby. I worried about when he started school and imaguined i would have to come back to the school at lunchtimes to apply creams to stop his skin drying out. I worried about everthing regarding how the eczema affected him. I tried everything and was prepared to go without food to find relief to his itchy, sore discomfort and pain.

LUckily for us, we found relief with a mixture of herbs, homeopathy and mineral/natural creamsand as you can imagine it's a huge weight off my mind, yet at he same time, although you can not even tell he suffered so badly as a baby, I worry about flare ups in the future which i know are probable.

SOmetimes he gets a flare up now, but its nothing compared to what it used to be and i know that and am thankful for that. But the worry never really completely goes. I hate eczema with a passion. I think it is such a cruel affliction for a child and i wish there was a miracle cure. It's such an unfair condition which really can deeply affect your whole family life. I suffered VERY badly as a child and they didnt think i would grow out of it. There were parts of my body that were constant open sores and scabby skin. But I DID get better and amazingly people now tell me now that I have great skin and look younger than I am and i put this down to the fact I had to have shed loads of moisturisers applied to my body and face from such a young age.

So what i am trying to say is, I do have an idea of what you are going through and I completely sympathise and truely hope you and Erin find relief in the near future. PLease don't give up hope because I am sure there is a light at the end of the tunnel. It's just a bugger getting there.

ta Starry- that did make me feel loads better xx

I'm so sorry Pixie, Isobel's is quite bad at the moment too but she only has a couple of patches and it's nowhere near as bad as E's. I just wanted to send you hugs and let you know you are both in my thoughts and prayers
Sarah x

It's Dr David Atherton at Great Ormond St. He has written a book aswell i think, if you look on Amazon. He comes highly recommended.

ta- oh and she uses her eczema to get her own way- little manipulator that she is- ask Anna- if I tell her off she scratches, if she's not getting her own way she scratches-